Let’s end 2020 and start 2021 out with a not so short history of this blog and my cancer journey. I started blogging at the request of a friend. He believed my bone marrow cancer odyssey would benefit anyone who embarked upon a similar journey. As I continued to write—I realized I would need a place to keep everything I’d written. At the same time, we were approaching the release of Misfire: What to Do When Things Aren’t Running on All Cylinders. Keeping everything here on MisfireBook.com made perfect sense.
As my treatment seemed to normalize, the content of my blog seemed to migrate from transplant and treatment to topics more centered on life and living. That was before I realized that my continuing treatment would involve as much drama as it has. Or, the role cGvHD (chronic Graft vs Host Disease) would play in changing the trajectory of that treatment and recovery. While that might seem a bit dramatic, I would argue that six hospitalizations since December 2019 would suggest otherwise.
More than anything else, these episodes have confirmed that my recovery—like the recovery of so many others dealing with cancer or some other chronic illness—is ongoing. More about the process than a destination. That has been confirmed by this last adventure with Shingles, postherpetic neuralgia, and the intense pain I’ve endured since the rash and blisters disappeared.
Since then, I’ve had four (4) procedures. The first three involved sedation and two (2) different nerve ganglia. The last, which occurred just yesterday, involved multiple injections. A couple on my left eyelid. More than a couple on the tissue above and below my left eyebrow. And, finally, one on the bridge of my nose. I’m not a betting man, but I’d be willing to bet they are about to run out of places to inject me with anything!
If you’ve ever been through anything like this, you might recognize the struggle to determine what is appropriate to post and what is not. It is something I’ve certainly become more familiar with than I’d like. However, since I started out by sharing my experience and haven’t quite figured out where all that ends, this will serve as the latest installment in the series that has become my life. (Or, perhaps, more appropriately, the life that has become this series?)
There is one more thing. I’d like to take this opportunity to wish all of you a Healthy New Year! I know that tradition almost demands wishes for a Happy New Year! But with an absence of sufficient Healthy, I’m afraid there isn’t much room for a whole lot of Happy!
So, stay strong. Stay healthy, focused, and home.
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