Two Steps Forward, One Step Back

Mitch Schneider
November 17, 2019

The euphemisms are endless when it comes to explaining an obstacle. Particularly, an obstacle that impacts your recovery.

It’s only a bump in the road! A momentary setback… A glitch!

It doesn’t matter what you call it. Each is just another way of saying things aren’t going as well as they could or should and it’s something we’re all likely to face at one time or another. The question is how do we deal with these setbacks?

I’m dealing with this episode of Graft vs. Host Disease and/or the viral infection accompanying it in a number of ways. I’m focusing on my recovery and what it’s going to take to get there. I’m trying to understand what’s going on and how it is affecting me: physically, mentally, and emotionally. And, finally, I’m committed to doing whatever it takes to get through it.

For me, it started with compartmentalizing the pain I experience when I swallow, the discomfort in my mouth, cheeks, and gums, and how the medications I’ve started taking again are affecting me.

You don’t think about the drugs you’re being given while an inpatient. You feel lousy and all you care about is feeling better. When you begin to feel better, you’re consumed with feeling better and don’t think about much else. It’s when you’re back on those drugs again that you begin to recognize the impact they’re having and that’s where you can get lost.

The secret is simple. Focus on the how and what. Document it. Then, share it with your physician or members of your care team! Be transparent. Information presented in real-time is critical.

And, remember,  two steps forward followed by one step back still leaves you with a net gain of one step forward!

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